Our Rheumatoid Arthritis Blog

Hi there! Welcome to our blog, Positively Rheumatoid.  We are Katie & Stephanie and we are working hard to help spread awareness of RA and other autoimmune diseases in the younger crowd and let other young mothers who suffer know they’re not alone. Life with chronic illness can be hard and you may feel alone at times. You are not alone. We hope to bring people together and use each others tips and tricks to living a better life with chronic illness.

Have a topic you’d like our viewpoint on? Contact us or send us a message on Facebook. Have a question for other chronic illness sufferers? Send us a message and we will post it on Facebook and the Blog to get a wide variety of solutions. We know it can be difficult to find relatable and honest answers online when it comes to living with any chronic illness. We want to be a community that helps people find the real answers to coping day to day.

Thanks for stopping by. We hope you enjoy our posts and come see us again.

Katie & Stephanie

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Snap!

March 1st, 2017|0 Comments

 

I have been flaring, like whoa.  I hurt my shoulder pretty badly by lifting my arm from behind my head, which was super fun.  I spent a few days in a sling, and today is my first day out of it, trying to get some use of my right arm […]

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After a Break…

November 4th, 2016|0 Comments

Though Katie has been awesome at keeping up with our Facebook presence with information and awesome graphics, our blog has been a little neglected.

Okay, maybe a lot neglected.

Katie and I both have been through the health wringer, and it’s been kind of hard to write it out. My problems started […]

  • Neurologists, Rheumatoid Arthritis & Psoriasis...oh my!

Neurologists, Rheumatoid Arthritis & Psoriasis…oh my!

April 23rd, 2016|2 Comments

Well hello. It’s been quite awhile since I’ve felt inspired to write. My little family has been going through a lot of changes and despite not working anymore I’ve actually been pretty busy. I’ve been  going to my Arthritis Wellness pool class twice a week and going to physical therapy […]

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Sifter

April 3rd, 2016|1 Comment

I’m not a cup.  I’m a sifter.

Sorry for not writing for awhile, y’all.  Katie and I have both been undergoing some big health and life changes.  That’s the fun of this disease, never knowing what fresh, new hell will be thrown your way.

I still can’t really bring myself to get […]

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Not Much to Give

March 2nd, 2016|1 Comment

I’ve been having a day… No, a week or so, thus far, that I would like to just wipe out of my memory.  ER visits, Rheumatologist visits, Primary Care Doc visits, attorney visits… New meds, tests, injections, blah blah blah blah.  Someday I will explain it all, but today, I […]

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List of Common Auto Immune Disorders

March 1st, 2016|3 Comments

Autoimmune disorders are the unusual immune responses to the body’s own tissues and substances. Your body recognizes them as foreign and goes in for the attack. Treatment is typically done with heavy duty immune-suppressants, drugs that attempt to lessen the abnormal immune responses.

At this time, there are over 80 disorders, […]

  • Let's talk about flares.

Flare? What’s a flare?

February 18th, 2016|3 Comments

Well hello there. I’ve been crazy busy the last few weeks. My family has had quite a few big life changes as far as jobs and moving for the first time in 9.5 years so my body is super pissed about that. Pair that with medical insurance changes and having to stop and […]

  • Why Sleep- Watch the same movies over and over and overand count down to yournext pain pill instead!

Painsomnia

February 2nd, 2016|2 Comments

Pain + Insomnia = Awful
I am beginning this post 15 minutes into Rheumatoid Arthritis Day.  I am not yet wearing my indigo, but I have spent a good amount of time between when my children went to sleep (Em held out til nearly 9), when my husband went to sleep […]

  • Rheumatoid Arthritis and The Heart Connection

Rheumatoid Arthritis & The Heart Connection

January 21st, 2016|19 Comments

If you’re living with Rheumatoid Arthritis I’m sure you’ve heard about Glenn Frey dying from “complications from Rheumatoid Arthritis, ulcerative colitis and pneumonia.” I’ve personally already had several people tell me they were unaware you could die from Rheumatoid Arthritis. It’s difficult for people to imagine in this day and […]

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The Young Mother’s Guide to Walkers

January 18th, 2016|15 Comments

Or, You Know, for Anyone Who Has No Idea What He or She Is Doing.
So, I’ve had RA for awhile.  It was kind of dormant when I was pregnant and when my babies were little, but since my two and a half year old was about six months old, my health […]

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My Favorite Rheumatoid Arthritis Items

January 11th, 2016|3 Comments

Oh online shopping. You are the absolute best. Especially for someone with chronic illness and small children at home. Most days I have to tell myself not to even open my shopping apps because it will NOT end well.

So my addiction to online shopping has some benefits. I have found […]

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A Morning in the Life of a Chronically Ill Mom

January 6th, 2016|10 Comments

Because, you know, morning’s almost over, and that somehow inspired me…
Parenting is hard all the time in all situations.  Wanted to get that out of the way, first off.  My kids are little angels sent straight from heaven, but they are also horrible monsters who daily chip away at my […]

  • 2016 GOALS

Positively Rheumatoid 2015 Recap

January 2nd, 2016|0 Comments

What’s your favorite song of 2015?
S:  I’m gonna be totally cliche and say Hello by Adele, even though it’s pretty stalker-y.  Can’t help but love her in all her buxom beauty, and the fact that she is so incredibly self-confident.  I want to be her when I grow up.

K: I […]

  • Big Changes are Coming

Big changes are coming this year.

December 29th, 2015|0 Comments

I’d be lying if I said 2015 wasn’t just an awful year. There were  some good memories but there was a lot of struggle and grief for my family and a lot of my friends and their families. I always try to put a positive spin on things and I […]

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Ups and Downs in Advent

December 21st, 2015|1 Comment

I don’t go all preachy, but I am going to talk about stuff that happened in church.
So, yesterday morning was our church Christmas Pageant.  It was adorable, and there was a lot of talk about how our children are our present and should be allowed to move like children and […]

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The One that Is a Bummer

December 13th, 2015|5 Comments

Hey, y’all!

I try to keep things pretty upbeat, but life with chronic illness is, understandably, not always upbeat.  Katie and I started this blog for a couple reasons:  To be a resource for other chronic illness sufferers, especially those beginning their journey and dealing with the parenting world as well, […]

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Favorite Rheumatoid Arthritis Blogs

December 9th, 2015|6 Comments

If you are like me and have this totally glamorous disease you may find yourself reading a lot of personal online experiences. Everyone deals with RA differently and has their own unique experience with diagnosis and treatment. I’ve compiled a list of my favorite Rheumatoid arthritis blogs, websites and Facebook […]

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Because I’m a Real Person

December 4th, 2015|2 Comments

Okay, so, the pharmaceutical companies think they know their target audience.  For the most part, they probably do, if the waiting room at my rheumatologist is any indication.  However, they kind of overestimate the “after” effect of their medications on those of us with severe RA.  I made my sister […]

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Sickness levels at 100%

November 29th, 2015|0 Comments

The week of Thanksgiving is always crazy, and the whole family got a cold, which immediately turned into me getting a sinus infection because I have to keep my sickness levels at 100% at all times. I spent Monday and Tuesday curled up and waiting for my heavy duty antibiotics to […]

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Actemra Infusion

November 21st, 2015|2 Comments

Well…hello. I’ve been slacking on posting, since my life has been a mess of crazy lately but I’m here now so it’s all good.  I’m writing bits and peices of this while I wait to get my Actemra infusion. Just a brief run down of my ridicously long medical history in […]

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Infusion Day

November 19th, 2015|1 Comment

My infusion was actually Tuesday, but I am still trying to get used to this blog format, so I am a little behind, haha! So, my DMARD (disease modifying anti-rheumatic drug), which i I started in March of 2015, is a biologic that I get by infusion, and today is infusion […]

  • New Things are scary

New things are scary.

November 15th, 2015|4 Comments

The first post on a new blog is kind of a terrifying thing to me. I don’t really like new things. I am a fan of comfort- Yoga pants, hot mug of tea, and homemade baked goods are my jam.

Anyway, I’m Stephanie. I am a mom and I am chronically […]